Resource library
Guidance for the parts of this that nobody prepares you for
A growing library of plain-language guides written for families and caregivers, not for clinicians. Every guide opens with the short version, then explains what to expect, what to ask, and what to do next, with its sources and the month it was last revised.
14 guides · 7 topics · Revised November 2026
Topic
What you need
3 guides match this view
Final days
3 guides
End of life9 min read
Terminal Restlessness: Why a Dying Person Becomes Agitated
This guide explains why agitation and confusion happen at the end of life, how the hospice nurse investigates causes, and how families can create a peaceful environment.
Illness5 min read
Hospice and Advanced Kidney Disease
How dialysis and hospice fit together, and how comfort is managed when dialysis stops or is never started.
End of life8 min read
What to Expect in the Final Days of Life
The physical changes that usually happen, what helps, what does not help, and who to call when you are unsure.
How these are written
These guides draw on published guidance from Medicare, the Centers for Medicare & Medicaid Services, and the National Institute on Aging. Each one lists its sources and the month it was last revised. They are general education, not medical advice, and they do not describe what a particular provider offers. New guides are added regularly, and corrections are welcome.
Reading helps. Talking helps more.
If something you read here matches what you are seeing at home, call and describe it. A nurse can help you think through whether an evaluation is worth arranging.
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