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Guidance for the parts of this that nobody prepares you for

These guides are written for families and caregivers, not for clinicians. Each one opens with the short version, then explains what to expect, what to ask, and what to do next with its sources and the month it was last revised.

12 guides · 3 topics · Last revised October 2026

Start here

3 guides

The three guides most families need first: what to gather before care begins, how to compare providers, and how to raise the subject at home.

Caring at home, and what comes at the end

3 guides

For the long weeks of hands-on care, and for the days and weeks around a death.

Guidance for a specific illness

6 guides

How comfort-focused care works when the diagnosis is dementia, heart failure, cancer, COPD, ALS, or advanced kidney disease.

How these are written

These guides draw on published guidance from Medicare, the Centers for Medicare & Medicaid Services, and the National Institute on Aging. Each one lists its sources and the date it was last revised. They are general education, not medical advice, and they do not describe what a particular provider offers.

Reading helps. Talking helps more.

If something you read here matches what you are seeing at home, call and describe it. A nurse can help you think through whether an evaluation is worth arranging.

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